We supported the Sickle Cell Society and the All-Party Parliamentary Group on Sickle Cell and Thalassaemia to run an inquiry into sickle cell care, comprising three oral evidence sessions and a call for written evidence, which resulted in over 100 submissions.
Based on the extremely powerful and concerning evidence we received, we produced a report, No One’s Listening, which detailed the experiences and perspectives of sickle cell patients, including widespread consensus that racism is a factor in care failings around sickle cell, a condition that primarily affects people with African or Caribbean heritage.
The report received prominent media coverage, including by the BBC Radio 4 Today programme, ITV News, Channel 4 News, The Guardian, The Independent and the New Statesman, among others.
During a debate in Parliament on the report, the Shadow Social Care Minister Liz Kendall described the report as “one of the most powerful, serious and substantial reports I have read in a long time in this place and while working in the health and care field”.
The report has prompted a response to the long-overdue need for action around sickle cell care, with the NHS launching a wide-ranging review of the sickle cell care pathway, which has already resulted in the launch of a sickle cell awareness campaign and the establishment of new specialist NHS sickle cell centres across the country.
We have now been commissioned by the Sickle Cell Society to conduct a follow-up project, focused on the sickle cell nursing workforce.
“It has been an absolute pleasure working with Principle. Our Consultant, Aidan Rylatt, hit the ground running and was an integral part of the team.
Our commission was a major piece of work involving people living with sickle cell from across the country, senior healthcare professionals and cross-party Parliamentarians.
Principle helped us deliver our excellent “No One’s Listening” Report. The report was of a very high quality, receiving many plaudits nationally and internationally. Thank you Principle. This is the most comprehensive report on sickle cell care that our All-Party Group has ever published.”John James, Chief Executive
The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
It has been an absolute pleasure working with Principle. Our Consultant hit the ground running and was an integral part of the team.John James, Chief Executive
Achieving cut through during the pandemic has been challenging, but thanks to the expertise and support of Principle Consulting, the work we did to highlight the impact of COVID-19 on our community gave us the platform we needed to raise the profile of rare autoimmune conditions with key decision makers and the opportunity to help shape solutions.CO-CHAIR, RARE AUTOIMMUNE RHEUMATIC DISEASE ALLIANCE (RAIRDA)
As a result of receiving ongoing support from Principle, we've had huge successes in our advocacy work. In the past year our parliamentary profile has increased a vast amount, Principle helped us to secure a meeting with the immigration minister as well as put our agenda in front of the Home Affairs Select Committee.We Belong
Principle Consulting have made a real impact with our work to see improvements in migraine careRob Music, chief executive of The Migraine Trust
I consider the call to bring Principle on board in March last year as one of my very best decisions as a leader.James Radford, Director of Strategy & Communications, St John Ambulance, July 2021
Principle Consulting made sure that our voice was heard when it mattered most. As an organisation whose people and services felt the worst ravages of the pandemic, we needed a consultancy we could trust to help us lobby behind the scenes and raise our voices in public – and Principle have done just that.Emily Bird, Head of Communications, MHA
Principle Consulting have bought extensive research and public affairs expertise to the Patient Information Forum’s work on integrating the provision of health information into the delivery of care. From day one, the consultants have felt like members of our team, getting up to speed with the topic area quickly, and driving the project forwards. We really appreciate their committed, proactive and flexible approach.Joint Head of Operations, Patient Information Forum
Principle have quickly become an essential part of our team once more, improving our engagement with MPs and other stakeholders, and raising our profile amongst policy makers. We find their perspectives and insight from across the charity sector a fantastic resource, whilst their ability to adapt to our organisation’s ways of working, their can-do attitude, and clear dedication to our cause are all greatly appreciated.Laura Lehman, Head of Marketing and communications
Principle Consulting (trading name) is the same company as Principle Affairs Ltd, company number 05467588 (full details available on Companies House).